NAIMS-IR Policy

Privacy and Accessibility Policy The NAIMS-IR database search page is where you will browse the available datasets, and make a selection of the data you would like to request. We are fully committed to maintaining confidentiality and protecting online privacy as outlined in the British Columbia Freedom of Information and Protection of Privacy Act and the Health Insurance Portability and Accountability Act (HIPAA). Access to the content and services of the repository is limited only to NAIMS-IR members who are bound by Member Repository Agreement and have their proposals approved by the Data Governance Committee.

We collect a minimal amount of identifiable information from NAIMS-IR members through communication profiles upon accessing the repository. The personal information collected includes name, email, affiliated instituted, phone, and address. This information is collected to ensure that access is given only to authorized personnel, and to notify members with updates and/or specific issues regarding data in the repository

All reasonable precautions are taken to prevent unauthorised access to this information. We do not disclose, give, sell, or transfer any personal information obtained about members from this repository to third parties. If a members personal information changes, or if they no longer need to access our repository, we will endeavour to provide a way to correct, update, or remove their personal data from our record.

NAIMS-IR only receives, stores and shares de-identified MRI data.

Security Policy The confidentiality and security of data in the repository are matters of great importance to NAIMS-IR. This policy complies with the established standard operating procedures and policies of Vancouver Coastal Health Research Institute, Health Canada, and FDA.

NAIMS-IR is hosted on the EduCloud Server which is a secure, self-managed cloud server service offered by UBC Information Technology. External access to EduCloud is controlled by premium Edge Gateway Firewall. All databases are backed up daily, and a crash-consistent backup is taken every night and vaulted to a remote site in Kamloops, BC directly. This backup system also meets provincial privacy requirements under the Freedom of Information and Protection of Privacy Act (FIPPA) legislation, which stipulates that consent must be obtained for data to be stored/accessed outside of Canada. The consent must specify who may store or access personal information outside of Canada, and the purpose of storing or accessing the personal information.

Access to the repository will be controlled through a defined access control policy, covering user identification and authentication. Access is given only to NAIMS members who have agreed upon and signed Member Repository Agreement, and have their proposal approved by the Data Governance Committee. This contractual binding requirement will also ensure appropriate use and protection of information assets.

NAIMS-IR only receives, stores and shares de-identified MRI data.

Citation Policy If any materials obtained from NAIMS-IR is being used for manuscripts publication, abstracts, posters, and/or presentation, please include appropriate acknowledgement of the source of NAIMS-IR data. This acknowledgment must reference the source of funding for the NAIMS-IR and its data platform, as well as UBC’s MSMRI Research Group for the creation and implementation of the platform. All publications must include at a minimum the following acknowledgment for sources of funding:

“This research was made possible using the data collected by the NAIMS-IR [Dataset version #]. Funding for the NAIMS-IR is provided by the Hilton Foundation Grant under grant reference 20220”.